STAND. COM. REP. NO.  1926-22

 

Honolulu, Hawaii

                , 2022

 

RE:   S.B. No. 2032

      S.D. 2

      H.D. 2

 

 

 

 

Honorable Scott K. Saiki

Speaker, House of Representatives

Thirty-First State Legislature

Regular Session of 2022

State of Hawaii

 

Sir:

 

     Your Committee on Judiciary & Hawaiian Affairs, to which was referred S.B. No. 2032, S.D. 2, H.D. 1, entitled:

 

"A BILL FOR AN ACT RELATING TO GENETIC INFORMATION PRIVACY,"

 

begs leave to report as follows:

 

     The purpose of this measure is to protect the privacy and confidentiality of genetic data of consumers who use the products or services of direct-to-consumer genetic testing companies by requiring these companies to adhere to certain requirements pertaining to the collection, use, and disclosure of genetic data.

 

     Your Committee received testimony in support of this measure from the Office of Hawaiian Affairs and Department of Commerce and Consumer Affairs' Office of Consumer Protection.  Your Committee received testimony in opposition to this measure from the Coalition for Genetic Data Protection and Advanced Medical Technology Association.

 

     Your Committee finds that the popularity and use of direct-to-consumer genetic tests is growing exponentially.  Your Committee further finds that existing state law fails to provide adequate guidelines for use of genetic data collected.  This measure safeguards the privacy, confidentiality, security, and integrity of a consumer's genetic data by requiring direct-to-consumer genetic testing companies to provide clear disclosures and obtain express consent for certain actions.

 

     Your Committee has amended this measure by making technical, nonsubstantive amendments for the purposes of clarity, consistency, and style.

 

     As affirmed by the record of votes of the members of your Committee on Judiciary & Hawaiian Affairs that is attached to this report, your Committee is in accord with the intent and purpose of S.B. No. 2032, S.D. 2, H.D. 1, as amended herein, and recommends that it pass Third Reading in the form attached hereto as S.B. No. 2032, S.D. 2, H.D. 2.

 

Respectfully submitted on behalf of the members of the Committee on Judiciary & Hawaiian Affairs,

 

 

 

 

____________________________

MARK M. NAKASHIMA, Chair