HOUSE OF REPRESENTATIVES
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Senator Rosalyn H. Baker, Chair |
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Senator Stanley Chang, Vice Chair
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Sen. Jarrett Keohokalole |
Sen. Laura H. Thielen |
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Sen. Clarence K. Nishihara |
Sen. Kurt Fevella |
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Sen. Russell E. Ruderman |
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COMMITTEE ON HEALTH |
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Rep. John M. Mizuno, Chair |
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Rep. Bertrand Kobayashi, Vice Chair |
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Rep. Della Au Belatti |
Rep. Calvin K.Y. Say |
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Rep. Nadine K. Nakamura |
Rep. James Kunane Tokioka |
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Rep. Joy A. San Buenaventura |
Rep. Gene Ward |
NOTICE OF MEETING
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DATE: |
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TIME: |
8:30 a.m. |
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PLACE: |
Conference Room 325 State Capitol 415 South Beretania Street |
Drinking Alcohol While Pregnant - Fetal Alcohol Spectrum Disorder & Improving Outcomes Across Systems of Care
The purpose of this briefing is to review Fetal Alcohol Spectrum Disorder (FASD), which affects many families in Hawaii, and to determine the best plan of action to efficiently improve outcomes, policy, and services for individuals and families affected by FASD.
Fetal Alcohol Spectrum Disorder is the umbrella term used to describe the range of effects that can occur from prenatal alcohol exposure. FASD conservatively affects 5% or 1 in 20 first graders in the U.S. According to the Centers for Disease Control (CDC), the lifetime cost for one individual with FAS in 2002 was estimated to be $2 million. This estimate does not include data on people with other FASDs. It is estimated that the cost to the U.S. for FASD alone is over $4 billion annually. The number of women drinking alcohol during their third trimester in pregnancy and the number of unintended pregnancies is increasing in Hawaii, leading to an urgency to prevent and improve services for individuals with FASD.
This briefing will seek to accomplish these four goals relating to improved services for FASD:
1. Training & Webinars
2. Support & Resources
3. Screening & Diagnosis
4. Education, awareness, and Public Policy
The following will be our presenters:
Ann Yabusaki, Ph.D., MFT, a psychologist, and family therapist and co-founder of Hawaii Fetal Alcohol Spectrum Disorders (FASD) Action Group in 2016, will present the FASD Action Group’s attempts to develop resources in Hawaii for families and individuals affected by FASD.
Terra Daniel, a member of the FASD Action Group and parent of a 14-year-old daughter with FASD, will discuss the family’s challenges and ways they have worked to obtain the proper interventions for their daughter.
Sara Messelt is the Executive Director of Proof Alliance, formerly the Minnesota Organization of Fetal Alcohol Syndrome. Since 1998, Proof Alliance has had a dual purpose: providing education on the impact of alcohol use during pregnancy, which can encompass a lifetime of physical, mental and behavioral disabilities, and championing efforts to enable individuals living with FASD to reach their full potential. Under her leadership, Ms. Messelt successfully worked with legislators to pass several pieces of legislation in Minnesota improving the quality of life for people living with FASD and for mothers who are dealing with substance use disorders. Ms. Messelt will discuss their challenges and successes at expanding services for people with FASD.
At the conclusion of the presentations, the Committees will reserve the final 15 minutes to highlight the top priorities relating to FASD in Hawaiʻi, and a Plan of Action that may contain bill proposals for the 2020 Legislative session, administrative action, and/or memorandum of agreements between departments to improve education, awareness, and access to services for individuals and families affected by FASD.
No public testimony will be accepted.
If you require auxiliary aids or services to participate in the public hearing process (i.e., interpretive services (oral or written), ASL interpreter, or wheelchair accessibility), please contact the committee clerk at least 24 hours prior to the hearing so that arrangements can be made.
For further information, please call the Committee Clerk at 586-6050.