STAND. COM. REP. NO. 1232

Honolulu, Hawaii

RE:    S.C.R. No. 62

       S.D. 1

Honorable Donna Mercado Kim

President of the Senate

Twenty-Seventh State Legislature

Regular Session of 2013

State of Hawaii

Madam:

     Your Committees on Health and Technology and the Arts, to which was referred S.C.R. No. 62 entitled:

"SENATE CONCURRENT RESOLUTION URGING HAWAII'S CONGRESSIONAL DELEGATION TO SUPPORT CONTINUED FUNDING FOR THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM FOR NEUROFIBROMATOSIS AND ENCOURAGE THE RENAMING OF THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS TO THE DANIEL K. INOUYE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS,"

beg leave to report as follows:

     The purpose and intent of this measure is to urge Hawaii's Congressional delegation to support continued funding for the Congressionally Directed Medical Research Program for Neurofibromatosis and encourage the renaming of the Congressionally Directed Medical Research Programs to the Daniel K. Inouye Congressionally Directed Medical Research Programs.

     Your Committees received testimony in support of this measure from one individual.

     Your Committees find that neurofibromatosis is a genetically-inherited disorder in which the nerve tissue grows tumors that may be benign and may cause serious damage by compressing nerves and other tissues.  Neurofibromatosis affects more than two million people worldwide and has no known cure.  In 1992, under the leadership of Senator Daniel K. Inouye, Congress established the Department of Defense Congressionally Directed Medical Research Programs.  Your Committees find that the Congressionally Directed Medical Research Program for Neurofibromatosis is the single largest funding source for neurofibromatosis research.  In light of this fact, your Committees find it necessary to urge Hawaii's Congressional delegation to support continued funding for the Congressionally Directed Medical Research Program for Neurofibromatosis.

     Your Committees have amended this measure by:

     (1)  Removing language encouraging the renaming of the Congressionally Directed Medical Research Programs as the Daniel K. Inouye Congressionally Directed Medical Research Programs; and

     (2)  Changing the title of this measure to remove the reference to Senator Daniel K. Inouye.

     As affirmed by the records of votes of the members of your Committees on Health and Technology and the Arts that are attached to this report, your Committees concur with the intent and purpose of S.C.R. No. 62, as amended herein, and recommend its adoption in the form attached hereto as S.C.R. No. 62, S.D. 1.

Respectfully submitted on behalf of the members of the Committees on Health and Technology and the Arts,

____________________________ GLENN WAKAI, Chair

____________________________ JOSH GREEN, Chair